The regulation of health data sharing in Africa : a comparative study

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Authors

Nienaber McKay, Annelize G.
Brand, Dirk
Botes, Marietjie
Cengiz, Nezerith
Swart, Marno

Journal Title

Journal ISSN

Volume Title

Publisher

Oxford University Press

Abstract

The sharing of health data is an essential component in the provision of healthcare, in medical research, and disease surveillance. Health data sharing is subject to regulatory frameworks that vary across jurisdictions. In Africa, numerous factors complicate the regulation of health data sharing, including technological, motivational, economic, and political barriers, as well as ethical and legal challenges. This comparative study examines the regulation of health data sharing in Africa by comparing and contrasting the legal and policy frameworks of five African countries. The study identifies gaps and inconsistencies in the current regulatory regimes and provides recommendations for improving the regulation of health data sharing in Africa.

Description

Keywords

Policy, Health data, Data sharing, Data governance, Comparative study, Africa

Sustainable Development Goals

None

Citation

Nienaber McKay, A.G., Brand, D., Botes, M., Cengiz, N. & Swart, M. The regulation of health data sharing in Africa: a comparative study. Journal of Law and the Biosciences 2024 Jan 18;11(1): lsad035. doi: 10.1093/jlb/lsad035.